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Support Groups For Rare Diseases
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Connecting Rare Disease Patient Communities and Advocacy Groups
PCORI
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1:28
The Importance of Advocacy Groups for Rare Disease Patients
CheckRare
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57:10
Rare Diseases are Not Rare – A Training on Rare Disease Resources
Network of the National Library of Medicine [NNLM]
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Natural History Studies for Rare Diseases
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CheckRare
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57:19
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How can the medical community support the rare disease community?
Austin PBS
180 views
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Rare Disease Advocacy Groups Need to Join Together
Rare Disease Report
150 views
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25.04.2015 FAD & fFTD support group: UK Strategy for Rare Diseases
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Rare Disease Advocacy
CheckRare
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1:53:05
Rare Disease Day 2022
David Geffen School of Medicine at UCLA
296 views
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Rare Disease Advocacy Groups
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4:26
Patients Matter: How Rare Disease Patients Can Move Scientific Discovery Forward
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Improving the Diagnosis of Under-Recognized and Rare Diseases in Asians
Stanford Health Care
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Rare Genetic Disorders
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10 Tips for Newly Diagnosed Rare Disease Patients and Families
National Organization for Rare Disorders (NORD)
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Coordination of Rare Diseases at Sanford is Uniting Researchers
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Rare Disease Drug Development Education Series Trailer
National Organization for Rare Disorders (NORD)
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